There's no simple answer to the question: When can we begin ascending aortic aneurysm surgery? Every person is different. But the simplest way to think about it is, we operate when the risk of surgery is less than the risk of having a rupture or dissection from the aneurysm. In this whiteboard session, Cleveland Clinic's Eric E. Roselli, MD, surgeon in the Department of Thoracic, discusses how they make the decision on when to operate.
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I am 30 im 5"7 I have a leaky valve and have been told I have Loeys-Dietz and im at about 5.7 cm I know I should have surgery but is this size really that bad please answer I need to know how long I can go without it or should I have it done right away
I was just told this past week via voicemail that I have an aortic aneurysm . Most videos, searches have scared me because there is so much focus on pretty much calling in a "death trap" . I liked how you explained it. I don't even know the size as the doctor never even told me, and the only info he gave me was "its mild " come back in a year. Ticked me off, so I am asking for my medical records. I did understand though about the risk of surgery vs risk of rupturing.. damned if you do,, damned if you don't.
Renee B you see I know it :) fantastic I which I can give you more support knowing we got the same problem but sometime Doctor scare us for somethings is supposed to happen whit age so I'm so happy the best to your mother
I'm not sure if that's safe either. I googled if u can private message people on here I guess u can. U go to my channel, click the about tab and look for the message icon. I went to your channel there isn't a about tab on your channel see if u can see one on mine. We can try and do it that way. Thank you so much for your kind words. I'm also on my cell phone so not sure if that's why I can't or not.
I am told I have this also. I am 49 y/o 5-5" 170lbs currently in the military. I was discovered at 4.6 cm in 2006 and was monitored every 6 months. Recently 2017 Oct it has grown to 5.2 cm. I was told that I should have open heart surgery. Going to see a cardiologist Nov 14th to see what they say. Just by my brief description does it look like I may have this procedure done?
I don't understand the math using his formula for the ratio (Ao area/height). Note I was a BAV patient and did not have an enlarged aortic root, only 4.3-4.5 enlarged ascending aorta.
E.g. for a 4.5 cm aorta the area is 15.9 cm. Being 5'10" my height is 177.8 cm. The ratio is 15.9 / 177.8 = .0894 .. you can never get to 10? Or is the formula (height/area)?
I've posted my actual heart sounds whacking against my heart cavity. Why am I feeling this? I suspect the graft was not sized correctly and is flopping with each beat. My surgery was in April 2016 so more than enough time has passed. This is like Chinese Water Torture living with this as it even wakes me up from my sleep. I have no confidence in any of this and don't know what to do. My cardiologist in Marshall in Placerville can't even put the correct description in the record and they are even rude to me. They say I'm complaining of palpitations. My heart beats fine so they brush it off and ignore my appeals to them. I cannot live this way... I'm an educated UC Bio major with a second degree in computer science and was a senior DBA consultant for years. I don't make things up. This is in some ways destroying my life and would have rather taken my chances with the BAV and aneurysm.
What's worst is I've posted the recording of the knocking sounds and have only got 14 views. 14 views! No responses! In the age of the internet. Maybe I should say I was abducted and Aliens did the surgery LOL.
This pretty much infuriates me. I have been suffering with an intense knocking with each heartbeat since my BAV valve and dacron aorta graft replacement surgery in April 2016. I have tried several times to plead with the doctors that I have an issue and they deny I'm feeling anything other than a normal heartbeat (because they can't feel what I'm feeling).
Now I see with this video that they did not even need to replace the aorta with a dacron graft as my aorta was only 4.3-4.5 cm (less that the size to replace). And possibly there's an alternative to wrap the aorta with support?
Yesterday I discovered I could actually record my pounding/knocking heart sounds with my cell phone and will be doing a separate post. I need people to confirm they too can hear the ridiculous knocking with each beat on the recording as I believe the dacron graft is slamming against my breastbone with each beat. The nurse refuses to see me saying I am a difficult patient saying I think I'm smarter than her because I said she cannot feel what I'm feeling and does not want to listen to me (she actually shook her finger in my face). It's hard to believe the battles I've been fighting and trying to be strong. Real life training and pray no one has to go through this, but I know it's the dacron aorta flopping against my body because there's too much slop in there. I have not been able to get a single full nights sleep since the surgery a year ago as it's like a shutter slamming in the wind all night long but is inside my body. I don't know what to do. Murphy's Law is real..
Hello, I really hope i would get an answer to my question. I live in
Sweden and my mother has been preskribted medicin pradaxa 150ml 2x a
day, and Metropolol orion 50ml 1 x a day. My question is, does my mother
really need these two pills?? She has always been very healthy
nonsmoking person, untill she one time fainted at work and had the
report that it was an epidermoid zyst in her brain. She was operated and
during the operation she had ia mini stroke or it looked like it as the
doctors said. After 2 years everything was fine except her disiness
that she always had sense then.
Now she has been diagnosed with a heart-problem bisqupid aorta (from birth). She has a aorta descendens 46mm ubove heart. High blood pressure sometimes (rises without any warning) and irregular heartbeat sometimes. The doctors said she also have fibrillation.
When my mother eats the Metropolol she gets dizzier and are very tired. Would it help to reduce the dosis to 25ml? Or should she stop with the pradaxa. My mother is 54 years old.
Please help me. We feel that the Doctors doesnt give their best in her situation, she was alot better without these drugs. The pradaxa just give me chills. Is there any way she could only take betablocker (metropolol) and leave the pradaxa out?
Thank you Dr. Roselli for posting this information for those of us who have this condition or a loved one with this condition. I have been worrying myself sick about my mother who has this condition and might need surgery. I would like to ask you this question: Can a ascending aortic aneurysm that is less than 5 cm be reversed or corrected using diet and medication?
O M hello I have that same problem of your mother under 5.0 and the only think is medication like for blood pressure or for cholesterol or to control diabetic medicine so good luck for your mother hope the best
I have been diagnosed with an aortic root aneurysm. I receive my medical care from the VA. They check me every 6 months. I am currently at 4.8 cm. There has been no change in the size of the aneurysm for at least 6 months. I am due for another check in December of 2015. I have been told not to worry about surgery because the odds are that I will never have to face surgery. I am a little nervous about this surgery. I was told it is a 6 hour surgery and that kind of worries me. I am also concerned about pain when I wake up and that endotracheal tube in my throat. I know you don't know me and haven't examined me but what is your honest opinion about what I have been told so far. I am a 66 year old male and a 100% DAV. I also have Multiple Myeloma from Agent Orange and Arterioscloratic heart disease. If I have to have this life saving surgery I want to have it done at Cleveland Clinic in Missouri West of St. Louis. Please Reply.
Hippy(Bboomer) same thing in America getting disability is next to impossible here for a thoriac aortic aneurysm, if anyone has had a positive outcome please let's talk. Not having an income because your sick... and waiting for the red tape..might as well be dead
6 cm? Mine is at 5 cm and my ratio is about 11. Why are you still waiting? I have to fight tooth and nail just to get the angiogram. Surgery can't come soon enough.. meaning I hate the wait and the beaurocracy that is the Canadian medical system.. Forget disability, just get to a cardiologist. Disability compensation is the least of your problems.. if you are dead, what good is it?
I am an 83 year old female with a Thoracic Ascending Aneurysm of 5.5 or 5.9 cm. (due to difference of opinion). Thoracic surgeons are discouraging me from surgery because of my age. They list complications such as death, kidney failure, stroke, etc. They say chance of rupture is only 20%. Do you agree?
I should note that, for all that I've been told, I likely have the fusiform type of enlargement/aneurysm. Also, please let me know if, as I've read on Cedars-Sinai.edu site, that any enlargement over 4 cm is considered an aneurysm. Would like to know.
I'm 48 YO, 6'3", and have been diagnosed with a dilated aortic root measuring 4.2 - 4.3cm, and a very dilated main pulmonary artery from 3.9cm to 4.4cm (these measurements were taken in 2011). Should I be having routine monitoring of my heart with such numbers? I know I'm in the low risk category, but with bp/heartrate control by atenolol, will this stay stable, or will I eventually be looking at surgery to prevent a rupture?
I am not a doctor. That said, DO have routine monitoring. Get fit and stay that way so your blood pressure doesn't go too high. Eat healthy, Your ratio sounds pretty safe. Mine isn't and I am 5-10, 170 lbs with a 5 cm Aorta. Am 71, and want to make it to 72. Needing/awaiting surgery. Didn't know I had this problem until last summer. You are very lucky to know your condition, and I wouldn't play games with this. Palpitations, fluttering, and aorta pains are scary stuff. I have the bicuspid too. Do the right things and hopefully, this won't come your way
Im at 5.5cm with a bicuspid valve I have to wait for surgery I wonder how long I can last?
the risk factor being so high Im set up for angiogram so Im in line for the surgery but information on people living with high risk is almost zero Im hoping that the aorta has some tolerance to give me the time i need
Hey thanks for you comments "Hippy(Bboomer)" I've been dealing with the fear factor myself recently and your words of logic struck home. I just got the result of an Echo done last week. I've got moderate AR of Aortic valve plus mild dilatation of the ascending aorta( 3.9 CM). Also another complication of a moderate dilatation of the aortic root (4.9 CM). Now scheduled for first cardiologist visit next week. In the mean time I've been researching the web. Thanks for giving your personal stats as it gave me a good frame of reference as I am close to your age and size at 70 years old, 6ft, 195 LBs.
Good luck to you.
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