A mother has claimed she often finds her four-year-old son rooting through bins for food - because a rare genetic disorder means he can never feel full.Frankie Udall, from Billericay, Essex, suffers from Prader-Willi syndrome, an incurable disease that can make him scream and lash out due to his hunger.His mother Tayla has attempted to deal with his condition by limiting his calorie intake but said it has left her feeling like she is continually 'starving her own child' despite knowing it is best for him in the long term.Many sufferers are left obese as they eat up to six times their recommended amount.Miss Udall has even had to install a stair gate to prevent Frankie from accessing the kitchen alone, and also makes him eat in a separate room to his brother Albie so that he doesn't try to steal his brother's meal.The 21-year-old is now showing heartbreaking footage of Frankie screaming after his meals to raise awareness of the life-changing disease.Miss Udall said: 'It's the worst feeling in the whole entire world. I feel like I'm starving my own child.'He'll go from totally fine to completely upset and hurting himself when he can't have food.'The fact I have to tell him he can't have any more food breaks my heart. He does honestly think he's starving.'As a mum, when your child cries you want to feed them. This goes against your instinct.'Frankie will eat a meal then want to keep on eating. He'll wake up thinking he's starving, eat his breakfast then ask for more and I have to say no.'Since starting school, Miss Udall believes the routine and eating when other children eat has helped Frankie understand meal times and portions.She added: 'He's in a better routine now since he started school in September and he knows when each meal time is, but when he's not at school he will try to eat constantly all day and try to get into the kitchen.'I had to get a stair gate to stop him getting in there - it's really sad. I left it open by accident a few months ago and he was going into the bin looking for food because he felt that hungry.'He will have two snacks along with lunch during the school day but, Miss Udall has his dinner on the table for exactly 4pm to avoid a 'complete meltdown'.One of the main symptoms of Prader-Willi syndrome is obsessive pursuit of food, which can lead to stealing and hiding food.Miss Udall said: 'Frankie will have his snack at school, then lunch then he'll want another snack. When he gets home from school I'll need to have his dinner ready for 4pm.'If it isn't on the table by then, he will have a complete meltdown and often afterwards, he'll ask for more. When I say no, he'll get really upset.'I try to give him fruit to make him feel full up while helping him stay healthy.She added: 'After his dinner and pudding, he'll then ask for more food later in the evening. I have the challenge of trying not to make him feel like he's going without.'He constantly forgets he had dinner and will eat a meal then ask for food half an hour later. When we say no, he'll start screaming.'Sometimes I'll know he wants more but I can't do it. He doesn't understand that he's full up.'I have to let the boys eat dinner in separate rooms because Frankie will try to steal Albie's dinner.'He'll scream and cry because he thinks he's still hungry. Along with that, he'll become really aggressive towards me, his brother and often himself. It's horrific and really hard.'When Miss Udall knew something wasn't rightFrom when he was a baby, Miss Udall kn1
My Therapy Dog and I have spent 9 years working with Prader-Willi kids at The Children's Institute in Pittsburgh, PA. These beautiful children face incredible challenges and fight hard to overcome them. My dog is up for an award in American Humane Hero Dog awards for his work with these kids and I am trying to create more awareness of the incredible bond between Special Needs children and Therapy Dogs. PLEASE VOTE!! STORY AND VOTING PAGE: http://herodogawards.org/dog/leo
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