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Mitochondrial Disease Patient Story - Cleveland Clinic Children's Hospital

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Mitochondrial disease affects 1 in 5,000 children. Learn more about the positive experience a Wooster, Ohio family has had in the treatment of mitochondrial disease for their two children at Cleveland Clinic Children's Hospital.
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Text Comments (41)
Nicky Fortune (3 months ago)
H
LOWE sonia (5 months ago)
sorrow that innocence should be afflicted with horrible illnesses sorrow for parents
Wil Glynn (5 months ago)
Did faith die😥😥😥😥😥😥😥😥😥😥😥🤯😥😥😥
John Smith (6 months ago)
Mito diseases are treatable with succinic acid or another organic acid from krebs cycle depending on which enzyme is mutated.
Brenna Theunicorn (6 months ago)
I have mitochondrial enzyme disease idk if it’s the same as this though
Marie Constance (10 months ago)
Did they know this illness is recessive? Both parents are carriers! Why have more kids! Adopt !
Zei Brai (1 year ago)
This is so sad why would any parent want to let their children suffer with no quality of life. parents like these should be put in prison for not ending the suffering at birth all for your selfish wants. wasting all this country money keeping these vegetable alive when other children with disability that have a quality of life could use
Maeve O'Keefe (2 months ago)
Shame on you.
Teigan (10 months ago)
Zei Brai With an attitude like yours there would never had been any cure found for any rare disease. It's brave, loving and caring parents like this that sacrifice everyday so that cures may be discovered. Hoping and praying that their child will be cured. Cancer patients suffer through treatments everyday in hopes of living and praying that a cure can be found not only for themselves but for future cancer patients. Would you tell a cancer patient not to seek treatment, not to hope for a cure just because a cure has yet to be found?
Me Myself and I (1 year ago)
Zei Brai sounds like your mom should have aborted you. How are you so insensitive? They have breathing machines, not life support. Their hearts beat on their own. They are humans. You must not know a single person with a disability bc then you wouldn't say that, and if you do, make sure to tell them their parents should've aborted them bc that is exactly what you are saying. You need help. Abortion is a personal choice and illegal in many places, and for you to say they should be in prison for not killing their children is just sick. You think a baby should be suffocated bc it is not "normal" is wrong on so many levels.
Margarita Ruiz (1 year ago)
Un saludo muy cariñoso desde Colombiap
Amy Mahoney (1 year ago)
if u go on Facebook, type in the name Kathy Pace Crisp:: her son Alex is also a mito baby, he is 13yrs old now: this go-round, they for a blockage in his bowel:: he has been in the hospital for about 6 weeks now.. please, visit the page, like, share, & pray for him & his family!!
Noemi and Noelia (2 years ago)
It's going to be ok just love them when you can God has them in he's mind it's fine to cry but make tho days last as long as you can you never know when will be the last time you see them.i hope and pray for them to get butter 🙇🙍
Deborah MacNeil (2 years ago)
I wonder if they vaccinated, as it has huge implications in this disease.
Penny V (3 months ago)
Also Google #hearthiswell and hear the stories of hundreds of other cases like my son's story
Penny V (3 months ago)
Google "autism congressional hearing" This was on c-span and it also speaks about mitochondrial disorders. Yes it is genetic but people with mitochondrial disorders can't take stress as it sets them back in many ways. My son's story: He was born full term...7.42 oz His apgar scores were 9 + 9 I nursed him just as I nursed all 3 of my,children. He started having trouble nursing at 2 months old right after his 2 month shots. To make a long story short. He is now 15 years old. He is tube fed, can't walk, talk or communicate in any way. He is mentally like a baby and is in diapers. This story on c-span is quite interesting. Please see it for further details
Katia Tannus (4 months ago)
I wonder if you had done research before commenting on here 🙃
lafl (1 year ago)
Deborah MacNeil you do realize it's genetic.
Me Myself and I (1 year ago)
Deborah MacNeil I doubt it. All studies show that vaccines do no harm. Including the one that the anti vaccine groups paid for.
Ron Taylor (2 years ago)
yes
Lily Rose (2 years ago)
did any one else cry
Rowan Hello (6 months ago)
Lily Rose almost
Leah W (2 years ago)
If you have one child with a deadly and debilitating disease, why would you choose to have another? It's cruel to create a precious life because of your own selfishness that will be full of pain and suffering. Shame on these "parents".
Ash1984 (1 year ago)
shame on you for passing judgment . Sometimes parents don't know the diagnosis
Harley Quinn (1 year ago)
Why do you say "parents"? they have kids. they are considered parents.
MusikGirl23 (1 year ago)
In so many cases, doctors can't figure it out for years, or say 'it will never happen to another of your children' but are wrong. What we know about genetics and epigenetics is tiny compared to what we still do not know.
pwincessness (1 year ago)
Well someone didn't pay attention, because if you had you would've noticed that between Faith and the youngest, there is a healthy boy. They probably figured that it would just be Faith, but obviously it wasn't.
Thabo Moyo (2 years ago)
+Miki W by your logic no one should have children, because no matter how perfect of a physical specimen you and your partner are there is always a chance of you producing a child with some sort of debilitating and possibly fatal illness, just because you don't know about it, that doesn't mean the possibility doesn't exist.
Steve Phillips (2 years ago)
Thank you for sharing such a lot about this condition: Very little seems to be known about this illness probably because it only effects minority of people so governments seem to see no point spending much on the research. Here is good book; Your Body's Many Cries for Water: You're Not Sick; You're Thirsty: Don't Treat Thirst with Medications1 Nov 2008 by Batmanghelidj, Fr http://www.amazon.co.uk/s/ref=nb_sb_noss?url=search-alias%3Dstripbooks&field-keywords=Your+Bodies+Many+Cries+for+Water+
kalo west (3 years ago)
God bless you and all of your children may they become strong and healthy soon
Best wishes to all of the little warriors fighting this disease and to their families. Caregivers, nurses, doctors, all medical staff truly are angels in disguise... God bless you all xo
Erinn Richards (3 years ago)
There is a reason people choose to work in a hospital, beyond those who chose a medical profession.  There is a reason you are a housekeeper in a hospital, an engineer in a hospital, a food service worker in a hospital, a janitor in a hospital, etc. Jobs that can be done in may different work settings but they chose to work in the hospital.  I'm delighted to know that Cleveland Clinic empowers every employee to be caregivers to patients and their families.
jazmiin heart (5 years ago)
best wishes!
Janine Johnson (5 years ago)
Epigenetics is changing the face of dealing with DNA disorders. I know I had CFS for 20 years and was the among the first to be on a natural supplement that directly restores healthy function of 52 genes tied to mitochondrial function. I believe this give hope to us all and the future of healing from these diseases
Jesse Matthews (5 years ago)
I am so sorry for the suffering of your family and your beautiful children. Revelation 21:4: And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”
DioViginTillion (1 year ago)
Jesse Matthews I.e kill everything. So why wait and euthanize them now. I never understand the book if revelations in the Bible. How come we can't fight God and have humanity continue instead of get wiped out by some being.
grettagrids (5 years ago)
how sad :( sometimes I ask why such disorders have to exist. I feel for this little boy, suffering a neurologic disorder myself along with some mysterious syndrome.

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