myasthenia gravis Muscle twitching ?
not a great vid my Calf Muscle twitch 24/7
Recently had muscle nerve test Electromyography (EMG)
by a registrar as soon as the test started the Doc said this is all wrong
He did the test on my full legs feet,leg.thigh,
Then my full arm,hand,arm,shoulder,then my spine
After the test the Doc then sent for a consultant
The consultant did the tests again and they couldn't believe the readings
On what there were seeing on the monitors as far as I know
The test went on for 150 mins in total
they said this is wrong
DURING THE TEST DOCS MENTIONED SOME RARE CONDITIONS
I cant remember them all but myasthenia gravis was one that I remember
CANT Wait to get a diagnosis fed up of 24/7 pain.
I Have been in chronic pain 24/7 for 8 months with pain in my
spin, Legs, Knees, hands, Fingers, Calf's, Elbows, Headaches,
crushed chest feeling, Ridges on my nails,itching eyes, Chronic Fatigue.Stiff neck,Doc found possible lump in armpit.CT Shows clear
muscle twitching 24/7 in calf's, ankles, and back of the hands
Blood pressure gone high.never had high blood pressure
The pain in my knees 24/7 is horrific
Pain from the knees shoots above and below the knee
Knee x-ray shows some joint disease.
The list of problems is endless,
I have a long history of arthritis,gout, asthma,
I'm a quiet hairy man and everywhere I have pain
I have lost hair its gone from my legs / calf's by 90%
my thighs 20% the back of my hands 20%
from my back I have a line of hair loss down my spine
I have a tingling pain down my spine
All blood tests are normal, full, bloods normal,
blood count normal, kidney, liver function normal,
Thyroid normal, calcium normal, vitamin normal,
B12 Normal, CT Scan normal, Normal size organs etc,
24hr three day urine collection, normal.
Three night urine collection normal,
chest xray normal, knee ultra sound normal,
docs looking for tumours carcanoid etc found nothing.
I have red areas of Skin, Constant Severe Sweating,
major heat intolerance moving from room to room
With different temperatures does cause severe sweating
Tried lots of meds nothing has helped
Any of the conditions
Nothing stops the pain.
tramadol, and paracetomal
Dihydrocodeine and paracetomal